ESRD Medical Director Resources - Links Main Page

Below is a list of useful links made available in alphabetical order. This list includes dialysis organizations, government agencies and sources of information, materials and tools related to nephrology. Click on the letters below to view listings.

 

 

A

Agency for Health Care Research and Quality (AHRQ)
http://www.ahcpr.gov/

The Agency for Healthcare Research and Quality (AHRQ), a part of the U.S. Department of Health and Human Services, is committed to helping to improve our national health care system. To fulfill its mission, AHRQ conducts and supports a wide range of health services research.

American Association Of Kidney Patients(AAKP)
http://www.aakp.org
Founded 30 years ago, the American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families.

American Kidney Fund (AKF)
http://www.akfinc.org
The American Kidney Fund is a national voluntary health organization dedicated to improving the daily lives of people with chronic kidney disease.

American Medical Association
http://www.ama-assn.org
The AMA develops and promotes standards in medical practice, research and education. American Medical News (AMNews) is now available on PDAs or via your wireless Internet connection. For more information, visit the AMNews Web site at http://www.ama-assn.org/sci-pubs/amnews/pick_01/tesa0730.htm

American Nephrology Nurses Association (ANNA)
http://www.annanurse.org/
Established as a nonprofit organization in 1969, the American Nephrology Nurses' Association (ANNA) has a growing membership of nearly 10,000 nephrology professionals. ANNA operates under a constitution and bylaws and serves its members through a national structure, four regions, and over 100 local chapters. Registered nurses and other healthcare professionals with varying experience and expertise in such areas as conservative management, peritoneal dialysis, hemodialysis, continuous renal replacement therapies, and renal and extra-renal transplantation comprise its membership. The American Nephrology Nurses' Association as a professional organization has the obligation to set forth and update high standards of patient care, educate its practitioners, stimulate research, disseminate new ideas through the field, promote interdisciplinary communication and cooperation, and address issues encompassing the practice of nephrology nursing.

American Renal Associates
http://www.americanrenal.com/

American Society of Diagnostic and Interventional Nephrology
http://www.asdin.org
The American Society of Diagnostic and Interventional Nephrology was founded ito promote the proper application of new and existing procedures in the practice of nephrology with the goal of improving the care of nephrology patients. These procedures include, but are not limited to insertion of tunneled hemodialysis and peritoneal dialysis catheters, endovascular procedures, and diagnostic sonography.

American Society of Nephrology (ASN)
http://www.asn-online.org/

American Society of Pediatric Nephrology (ASPN)
http://www.aspneph.com/

Association for the Advancement of Medical Instrumentation
http://www.aami.org
AAMI is the primary source of information on medical instrumentation and technology, and is the primary resource for the industry, the professions, and government for national and international standards. The Association for the Advancement of Medical Instrumentation (AAMI) announced the release of a new product for dialysis professionals. To order your new AAMI Standards on CD Dialysis, please call 1-800-332-2264 (ext.217) or visit http://www.aami.org/publications/CD/index.html for more information.

B

C

Centers for Disease Control (CDC)

Dialysis Surveillance Network (DSN)
http://www.cdc.gov/ncidod/dhqp/dsn.html

A voluntary national surveillance system monitoring bloodstream and vascular infections.

Centers for Medicare & Medicaid Services (CMS)
http://www.cms.gov/
CMS (formerly known as HCFA) provides health insurance through Medicare, Medicaid and State Children's Health Insurance Program (SCHIP). Visit our web site to learn about CMS activities and initiatives.

ESRD Overview
http://www.cms.gov/center/esrd.asp

Conditions for Coverage
http://www.cms.gov/CFCsAndCoPs/13_ESRD.asp

ESRD Clinical Performance Measures Project
http://www.cms.gov/CPMProject/

Fistula First

Policy & Memos to States and Regions
http://www.cms.gov/SurveyCertificationGenInfo/PMSR/list.asp

D

DaVita Patient Citizens (DPC)
http://www.dialysispatients.org
DPC is a non-profit patient organization dedication to improving the quality of life for dialysis and pre-dialysis patients.

DaVita
http://www.davita.com

Dialysis Clinic Inc .
http://www.dciinc.org/

Dialysis Corporation of America
http://www.dialysiscorporation.com/

E

End Stage Renal Disease Forum of Networks
http://www.esrdnetworks.org/

F

Fistula First
http://www.fistulafirst.org
The Centers for Medicare and Medicaid Services (CMS) in close collaboration with key stakeholders in the renal community, announced the launch of Fistula First, to achieve breakthrough improvements in the use of safe vascular access and promote the placement of AV Fistulas in all suitable hemodialysis patients.

Fresenius
http://www.fmcna.com/

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H

HDCN
http://www.hdcn.com/
Hypertension, Dialysis, and Clinical Nephrology, a site posted by the ASN and RPA and is aimed primarily at physicians and nurses who treat patients with renal disease. It provides selected information on renal disorders and their treatment (such as hemodialysis and peritoneal dialysis), and about hypertension, dialysis, and clinical nephrology topics. Users should be aware that certain portions of the site may only be accessed for a fee.

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J

K

KDOQI
http://www.kdoqi.org
The Kidney Disease Outcome Quality Initiatives created by the National Kidney Foundation have been placed online in HTML format for easy and quick access. These K/DOQI Guidelines have been established to assist health care professionals in early identification and mangement of kidney disease, with the intent of helping to improve clinical outcomes for individuals with kidney disease at all stages.

Kidney & Urology Foundation of America
http://www.kidneyurology.org
A leader in its field for over 50 years, the Kidney & Urology Foundation of America is dedicated to helping the more than 70 million Americans who suffer from the debilitating effects of kidney, urologic, and related diseases, and to fostering ground-breaking research that will result in new and better treatments.

KTV: Free dialysis adequacy software
http://www.chip.org/~asher/ktv
This site is a free KT/V dialysis adequacy calculator for hemo and peritoneal dialysis, with built in warnings for modeling errors and recirculation.

L

Life Options Rehabilitation Program
http://www.lifeoptions.org
Since 1993, the Life Options Rehabilitation Program has been exploring ways to help people on dialysis live long and live well.

M

Medicare - The Official U.S. Government Site for Medicare
http://www.medicare.gov

Medicare Part D - Home Page
http://www.medicare.gov/pdphome.asp

Dialysis Facility Compare
http://www.medicare.gov/Dialysis/Home.asp

Medicare Payment Advisory Commission
http://www.medpac.gov/
The Medicare Payment Advisory Commission (MedPAC) is an independent federal body that advises the U.S. Congress on issues affecting the Medicare program.

N

National Anemia Action Council (NAAC)
http://www.anemia.org
The National Anemia Action Council (NAAC) is a nonprofit organization dedicated to raising the awareness regarding the prevalence, symptoms, consequences, and undertreatment of anemia. NAAC's Web site, www.anemia.org , is the repository of the latest knowledge available on anemia, with special emphasis on the anemia associated with chronic disease. Unique features include an anemia reference library linked to PubMed, practice questions answered by anemia-expert physicians, and free online CME courses.

National Association of Nephrology Technicians (NANT)
http://www.nephroworld.com/nant.asp

National Institute Of Diabetes and Digestive and Kidney Diseases
http://www.niddk.nih.gov

The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. The Institute supports basic and clinical research through investigator-initiated grants, program project and center grants, and career development and training awards. The Institute also supports research and development projects and large-scale clinical trials through contracts.

National Kidney Disease Education Program (NKDEP)
http://www.nkdep.nih.gov/intro.htm
NKDEP was created by the National Institute of Diabetes and Digestive and Kidney Diseases to close the gap between evidence and practice. Working through a Steering Committee, Work Groups and private and public partners, NKDEP aims to reduce morbidity and mortality from kidney disease by raising awareness about the seriousness of the problem and the importance of prevention, early diagnosis, and appropriate management.

National Kidney Foundation
http://www.kidney.org/
The National Kidney Foundation, Inc. (NKF) is a voluntary health organization that seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. The NKF web site focuses on 4 groups: 1) the Health Care Professional, 2) Organ and Tissue Donors and Recipients, 3) Patients, and 4) the General Public. The NKF web site is clean and well organized. Of particular interest is CyberNephrology, the NKF's forum for discussion groups, archivals of renal meetings, continuing education programs, and an on-line journal club.

National Org. for Renal Disease (NORD)
http://www.stop-esrd.org
Licensed, health agency that produces health events/expos yearly in the Southern California area. Licensed, health care professionals oversee and provide health screenings. Target high-risk communities predisposed to developing kidney disease, diabetes and high blood pressure. Provides some related educational materials-including nutrition and diet. All services are free of charge. Volunteer driven. Target population: Latino, African American, Native American, Asian, Pacific Islander and seniors.

National Renal Administrators Associations (NRAA)
http://www.nraa.org
The National Renal Administrators Association (NRAA) is a voluntary organization representing professional managers of dialysis facilities and centers throughout the United States . Our members manage approximately two-thirds of the dialysis services to a majority of Medicare End-Stage Renal Disease SRD) patients. From a few charter members in 1977, the NRAA has become the largest national association representing renal administrators and managers. The NRAA fulfills the diverse needs of both hospital-based and freestanding facilities. Through education, networking, information, and governmental representation, NRAA aims to maintain competence and enhance professionalism throughout the renal community.

Nephrology - 2009
http://www.cme.hms.harvard.edu/courses/nephrology2009
CME course for practicing Nephrologists.

Nephrology News and Issues (NNI)
http://www.nephnews.com
Nephrology News & Issues, Inc. (NN&I) provides a professional forum for the exchange of ideas in renal care.

Nephrology Nursing Certification Commission
http://www.nncc-exam.org
The NNCC site has information regarding credentialing nurses working with patients with kidney disease.

Nephron Information Center
http://www.nephron.com
The major portal for the renal community: physicians, patients, nurses, technicians, dietitians, and social workers. Includes news events updated daily, a search engine for dialysis units, as well as links to FDA drug alerts, current congressional activity renal organizations, NIH grants, clinical trials, calculators, guidelines, government agencies and many resources for pre ESRD and ESRD management.

Nephrotogo
http://www.nephrotogo.com
NephroToGo is a comprehensive nephrology handbook for hand held computers that use the Palm operating system. The handbook can be downloaded free of charge at www.nephrotogo.com .

Nephroworld
http://www.nephroworld.com
The Virtual Community and Marketplace for Professionals, Patients, Organizations and Companies related to Nephrology.

O

P

The PKD Foundation
http://www.pkdcure.org/home.htm
The PKD Foundation is the only organization, worldwide, devoted to determining the cause, improving clinical treatment and discovering a cure for Polycystic Kidney Disease (PKD).

Q

R

Renal Advantage Inc.
http://www.renaladvantage.com/

Renal Cancer Watch
http://www.renalcancer.evidencewatch.com/
Latest evidence-based research on renal cell (kidney) cancer treatment; commentaries by Constantine Kaniklidis medical researcher

Renal Research Institutes
http://www.renalresearch.com/

RenalNet
http://www.renalnet.org/

RenalNet was created by Drs. Dugan and Frank Maddux, nephrologists in Danville , Virginia , to provide a clearinghouse for historical information on the cause, treatment and management of kidney disease and ESRD.

RenalWEB
http://www.renalweb.com
RenalWEB is the daily newspaper of the dialysis world. Features include constantly updated news, the Dialysis Yellow Pages, links to hundreds of resources, and discussion boards for patients, nurses, techs, and administrators.

RenalWorld
http://www.renalworld.com
A major resource base for the international renal community. Contains information about disaster relief, and arranges links by continent. This site links extensively into the Nephron Information Center as well as to many major resources worldwide.

S

T

U

United Network For Organ Sharing (UNOS)
http://www.unos.org/
The transplant community is joined under a nationwide umbrella: the United Network for Organ Sharing, or UNOS. UNOS administers the national Organ Procurement and Transplantation Network (OPTN) and the U.S. Scientific Registry on Organ Transplantation under contracts with the U.S. Department of Health and Human Services. The U.S. Scientific Registry is the most complete medical database in the world, tracking all solid organ transplants since October 1, 1987 .

United States Renal Data System (USRDS)
http://www.usrds.org/
The United States Renal Data System (USRDS) is a national data system which collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States . The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in conjunction with the Centers for Medicare and Medicaid Services (CMS).

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