In 1994 the Kidney Disease Quality of Life Working Group developed the KDQOL in an attempt to understand the relationship between functional status and well-being in end stage renal disease and their impact on outcomes measures.
- Instruments: You may access the instruments on the Kidney Disease Quality of Life Working Group site. Downloads are free but registration is required.
- Scoring: Also available for download are scoring programs including manuals, spreadsheet templates and samples.
- Professional Exchange: A Web chat site has been established to facilitate discussion among professionals regarding the use of SF tools in clinical trials.
Life Options has created - KDQOL-36 ONLINE - an online version of the short form designed as a learning tool for professionals.
The following article addresses in simple terms the uses and significance of the instruments.
- ESRD & Emotional Health: Taking a Closer Look at Dialysis & Depression Reprinted from the Renal Rehabilitation Report
Effects of Exercise
- Physical exercise among participants in the Dialysis Outcomes and Practice Patterns Study (DOPPS): correlates and associated outcomes. Francesca Tentori et.al. Nephrol. Dial. Transplant. (2010) 25 (9): 3050-3062.
- Effect of Exercise During Dialysis on Quality-Of-Life For Individuals with End-Stage Renal Disease. Ann M. Wilson; Nader Jabbour; Jamie Wilde; Ryan Yorimoto; Kathleen Hummel-Berry.
Physical Therapy, University of Puget Sound, Tacoma, WA. (2005)
- A twelve week exercise program improves the psychological status, quality of life and work capacity in hemodialysis patients. Levendoglu F, Altintepe L, Okudan N, Ugurlu H, Gokbel H, Tonbul Z, Guney I, Turk S. J Nephrol. 2004 Nov-Dec;17(6):826-32
- Five months of physical exercise in hemodialysis patients: effects on aerobic capacity, physical function and self-rated health. Molsted S, Eidemak I, Sorensen HT, Kristensen JH. Nephron Clin Pract. 2004;96(3):c76-81
- Effects of exercise training plus normalization of hematocrit on exercise capacity and health-related quality of life. Painter P, Moore G, Carlson L, Paul S, Myll J, Phillips W, Haskell W. Am J Kidney Dis. 2002 Feb;39(2):257-65
- Low-functioning hemodialysis patients improve with exercise training. Painter P, Carlson L, Carey S, Paul SM, Myll J. Am. J. Kidney Dis. 2000 Sep;36(3):600-8
- The life readiness program: a physical rehabilitation program for patients on hemodialysis. Tawney KW, Tawney PJ, Hladik G, Hogan SL, Falk RJ, Weaver C, Moore DT, Lee MY. Am J Kidney Dis. 2000 Sep;36(3):581-91
- Benefits of exercise training in patients on continuous ambulatory peritoneal dialysis. Lo CY, Li L, Lo WK, Chan ML, So E, Tang S, Yuen MC, Cheng IK, Chan TM. Am J Kidney Dis. 1998 Dec;32(6):1011-8
Data can be easily scored and variables can be quantified along any number of variables. For more examples link to the following:
- The BDI and the SF36: Which Tool to Use to Screen for Depression? Laura Troidle, Diane Wuerth, Susan Finkelstein, Alan Kliger, Fred Finkelstein, MD, Advances in Peritoneal Dialysis, Vol. 19, 2003
- Quality of Life in Patients with Chronic Renal Failure Kamyar Kalantar-Zadeh, MD, MPH, Assistant Professor of Medicine and Pediatrics,David Geffen School of Medicine at UCLA, Harbor-UCLA Medical Center, California, USA 3rd Congress of Nephrology in Internet, October 2003
- Statistical Summary of Quality of Life for Dialysis Patients Questionnaire Study Findings Promoting Excellence ESRD Workgroup